You have been
dismissed long
enough.
Stories of Endo is a nonprofit working to change how endometriosis is understood, diagnosed, and believed — through published research, free resources, and a community for every woman who has had to explain herself in an ER at 2am.
For over a century, endometriosis has been treated as a disease of the pelvis — and millions of women have been failed, dismissed, and left undiagnosed. We exist to change that: to fund and publish new research, to give patients free tools to be believed, and to make sure no woman fights this alone.
What we do.
Founded by a patient-researcher with 14 surgeries — driven by science, advocacy, and community.
"The Wrong Suspect" — our published, citable thesis reframing endometriosis as an estrogen-activated autoimmune disease. Free for any patient or doctor to read.
Read the research →Plain-language guides on endometriosis, adenomyosis, surgery preparation, getting your records, and how to be believed by the medical system.
Explore the guides →The Wall of Roses, where women share their stories, and the Endo Rose membership — a portal of tools and an NFC medical card that helps you be seen and heard.
See the Wall of Roses →The Wrong Suspect
A new hypothesis built from established science and one patient's documented record across fourteen surgeries: that endometriosis is not a menstrual or pelvic disease, but an estrogen-activated autoimmune one — and that it can be caught long before a scalpel ever finds it.
Written by our founder, Kaitlyn Stewart, patient-researcher. Free for every woman, every doctor, and every researcher who needs it.
Read the full thesisOpen access · Zenodo DOI 10.5281/zenodo.20587309
Warriors.
Every one.
They fought for their diagnosis. They fought for their lives. Now they wear their rose with pride.
"I wrote Invincible for you. For every woman who has been told her pain isn't real, her body is dramatic, her suffering is something to manage quietly. You are not quiet. You are not dramatic. You are invincible."
One tap.
Your entire
medical history.
The Endo Rose membership includes a gold NFC medical card that goes everywhere you go. When a doctor, ER provider, or specialist taps it — they see everything. Your diagnoses. Your surgical history. Your medications. Your allergies. Your emergency contacts. No login. No explaining yourself from scratch.
- Full medical profile — accessible by any provider
- Works on any phone — no app needed
- Updated in real time from your portal
- HIPAA compliant — your data, your control
- Mailed to you after your intake is complete
Included with membership
Everything you need,
in one place.
Built by a woman with 14 surgeries, for every woman who has ever had to fight alone.
Pain tracking, symptom logs, cycle monitoring, flare mode, CBS gene screener, pregnancy & hormone guide, dietary guide — all in one portal built for endo.
Your personal story page. Share your journey, accept donations directly to your fundraiser, and join a wall of warriors who refuse to be invisible.
Rosa is our AI story guide who helps you put your experience into words — on your terms, in your voice. Or schedule a personal interview with our founder.
Know how to get your records, what to ask your surgeon, how long recovery takes, how to fight insurance denial, and how to apply for disability — step by step.
Generate a professional medical summary from your profile — formatted for doctors, surgeons, and insurance companies. Print it. Bring it. Be believed.
You are not alone. Every Endo Rose member is a woman who fought for her diagnosis and won. This is your sisterhood. Your wall. Your voice matters here.
Support the mission.
Every membership, donation, and purchase funds our research and keeps our resources free for the women who need them.
Stories of Endo Inc. · 501(c)(3) Nonprofit · EIN 83-3776659 · Lifetime membership · No subscriptions